Day 79
Last Friday at clinic my numbers came back lower than the
previous week. Dr’s. think it is medicine related and took me off
2 pill medications they think were causing it and added a different one. Said it takes about 2 weeks to see
changes. Today at clinic numbers were down a little
again but not by much…so next week if they aren’t getting better they want to
do a bone biopsy to check the marrow. Obviously
hoping for a spike in the numbers and no biopsy until my 100 day mark (August
31).
My port arm has been sore for the past while. It was getting worse and I couldn’t lift it
high or sleep on it well. I knew
something was weird and talk to the PA today.
She was concerned so they sent me down to EKG and sure enough….I’ve got
a blood clot near my port. AUGHHH!
Rather than remove the port (since I need it a few more weeks for home
infusions) I now have to do the Louvinox shots (2 in my stomach every day until
the clot clears or they remove the port).
It burns like crazy going in and Jeff hates giving them to me as much as
I hate getting them. But we have a system and in 2 days I should notice less
pain in my shoulder and arm.
I’ve felt a little more energy the last 2 weeks. The scale moved up a little the past couple
days. Yeah! I was able to take Callie
school shopping and did great. Had
energy when I got home and did laundry too.
Still fighting the food issues but it is a slow process. McCall turned
15 last week end and is studying for her driver’s permit. Ahhhhh!
She made the Skyline High Soccer team and we’ve been busy with that. Callie decided to stay in gymnastics until
the fall. She and Jeff have been running
track and she loves it. Maybe that might
be her new “thing” come spring (?) Both
girls are not excited for school to start, but what kid is? I am going to miss them being gone all day
again.
I’ve also been
staying up late watching the Olympics. I
am addicted to it and have loved watching our athletes’ compete, win metals or
at least show good sportsmanship if they don’t.
It is crazy what some of them can do.
I am inspired to get into better shape faster. Sure did break up the monotony in my TV
watching life. (ha)
I am a little nervous about the counts but Jeff also assures
me things are medicine related. I am
still positive and hoping everything is alright.
I can’t think about negativity all the time and just try to live each
day the best I can. 10% MEDICINE 90%DETERMINATION!!!
2 comments:
Damn those numbers, but keeping my fingers crossed that they creep back up to where they're supposed to be.
That's such great news about McCall... congrats! And I can't believe she'll be driving soon. My how the time does fly.
I can't decide if I'm happy or sad that the Olympics are coming to a close. But at least I'll actually be able to get stuff done around the house and not be locked to the t.v. :).
We love and miss you and can't wait until we can get together for sushi (and that you'll actually be excited to eat it :) ). xoxo!
Sweetie....The fact that you had so much energy should tell you that this is medicine related....go with what you body is telling you. Those numbers are going to climb...I love your attitude...you have always had that through this whole fight. I love you...What an example you are to ALL of us! YOU ARE GOING TO WIN THIS FIGHT!!!!!
Keep up with the 90% and remember all of the love and support you have around you....We are all praying for you!!!
HUGS!!!
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