Monday, July 23, 2012

Day 61


Nothing real new to update so sorry things have been slow (which is a good thing).  I am on day 61 from transplant and so far things are going well.  My chest CT came back clean so I got off the voriconozole pills (which I hated…made me sick sometimes).  We will recheck with another CT in 4 weeks to make sure my lungs are clear.   Even in the summer months people get sick so I have to watch out and still pick going out in crowds. 

My CMV (small infection) came back negative as well.  I was taking an antibiotic infusion twice a day to clear it up.  No more infusions for that just another pill.   I am still doing the daily 2 hour magnesium infusions to help my kidneys.  (All the pills I take take a toll on my magnesium levels so I have to supplement for it.)  Jeff is still my nurse and takes good care of me.

All numbers are looking great and the doctors are happy with the progress.  I have started walking more and even did 4 flights of stairs today (whew…that was hard).  I have started with refried bean cans as weights for my arms and do small work outs with those.  Sounds funny huh?  I have no strength and need to build my muscle back up slowly.  I am still fighting the scale and trying to gain weight.  I got some great advice off Facebook this week from family/friends.  It is a slow process that I fight daily and sometimes I win other days I don’t.

Girls are doing great.  McCall is at BYU camp (I know……it was hard to let her go…..but she has all her UTES attire to wear!) She is going to have fun. She is staying in the dorms with other girls/friends and learning new skills.  There are a lot of fun activities, training and even swimming planned.  I miss her already! Callie still continues with gymnastics, but is thinking of maybe trying something else.  We are talking and looking into other sports she might like. It is her decision and she is trying to decide.  Jeff is busy with work as always and works from home about 2 days a week.   I try to help him where I can when it comes to household chores.

Thanks to the Baldareses’ and the Reeses’ for dinner this week.  It was great!  We are thankful for such great neighbors!

Saturday, July 7, 2012

Day 43


Platlets: 143
Red Blood: 28
White Count: 3.9
Tacro: 13.6
Neweys: 2300

Weekly clinic visit went well.  Got rid of some pills but added another.  Skin rash is gone and numbers are still climbing. I feel great!   Lack of energy and being tired a lot is still a frustration, but I nap if needed.

Cimerisim test came back 100% donor. YEAH!!   This is a good sign that the donor stem cells are working.  The doctors consider me in “remission” but I am so afraid to use that word since last time I did the cancer came back 2 weeks later.

Need to try and eat more (which is a constant struggle) but I am doing the best I can.  Girls are going boating with friends today and I am happy and jealous all at the same time.  Hope everyone is having a great weekend!!