Day 96

Day 96

BONE MARROW IS CLEAN!!! Yipeeeeee!!

Bone marrow biopsy was done on Friday. OUCH!  I was a nervous Nellie with high blood pressure and rapid heartbeat.  (I always have low blood pressure.)  I was the 5^th patient in clinic to have “the drill” instead of the manual tool to remove the marrow.  The pain was about the same but works faster.  The drill reaches in and gets a better sample too.  Got a call Friday night that the blood slides looked clean but needed to wait for some other tests to confirm.  Today I got another call that so far everything is clean and no signs of leukemia!!!!

This Friday (my 100 day mark) we’ll discuss with the doctors the next steps.  Need to follow up on some breathing treatments, maybe some scans and more blood work.  Hopefully I will get the port out sooner than later.

Two good friends are back in-patient and fighting this horrible disease.   My heart breaks for them. Send all of your good vibes to them….I have already been blessed!

Day 86

Clinic was good today.  NO BONE BIOPSY!!   

While things are fresh on my mind I wanted to update everyone.  Numbers are back up a little (platelets were the biggest jump to 131).  My neutrophils are still going down but doctors still think it is medicine related and not to worry.  My 100 day mark is August 31^st but next week we’ll do the biopsy (sad face) to get a head start on the testing just to make sure everything is clean.

No more home magnesium infusions just more magnesium pills. Removing some other pills and adding others.  No more depravera shots (stops menstruation and pregnancy). I am probably already starting menopause so as long as I don’t get a boyfriend I should be OK and not get pregnant. HA (With 5 years of infertility wouldn’t that be funny?)  NOT!!  I gained a few pounds since last appointment.  I hope they stay on!  I feel like I have more energy but still get tired. 

Still doing the Lovinox shots twice a day in my stomach.  Jeff and I have a system and he is a champ at doing it. They are still horrible, but maybe after the bone biopsy is clean they will consider taking out the port and recheck the clot.   Had the port in since January and I am getting tired of it.

Learned today at clinic that 4-5 of my close friends are all doing well and fighting this horrible disease.  It totally made my day and I want to shout out!!  We all need to get together and celebrate!!

Girls are great and we are busy with sports, getting ready for school, doing nails, playing cards and catching up on movies.  Jeff is working hard and takes good care of all of us.  I am so lucky to have him as my caregiver, husband, friend and fighter!

Thanks to all of you for your support, prayers, phone calls and thoughts. It does not go unnoticed and we are so appreciative!

Day 79

Day 79

Last Friday at clinic my numbers came back lower than the previous week.  Dr’s.  think it is medicine related and took me off 2 pill medications they think were causing it and added a different one.  Said it takes about 2 weeks to see changes.   Today at clinic numbers were down a little again but not by much…so next week if they aren’t getting better they want to do a bone biopsy to check the marrow.  Obviously hoping for a spike in the numbers and no biopsy until my 100 day mark (August 31).

My port arm has been sore for the past while.  It was getting worse and I couldn’t lift it high or sleep on it well.  I knew something was weird and talk to the PA today.  She was concerned so they sent me down to EKG and sure enough….I’ve got a blood clot near my port. AUGHHH!  Rather than remove the port (since I need it a few more weeks for home infusions) I now have to do the Louvinox shots (2 in my stomach every day until the clot clears or they remove the port).  It burns like crazy going in and Jeff hates giving them to me as much as I hate getting them. But we have a system and in 2 days I should notice less pain in my shoulder and arm.

I’ve felt a little more energy the last 2 weeks.  The scale moved up a little the past couple days. Yeah! I was able to take Callie school shopping and did great.  Had energy when I got home and did laundry too.  Still fighting the food issues but it is a slow process. McCall turned 15 last week end and is studying for her driver’s permit.  Ahhhhh!   She made the Skyline High Soccer team and we’ve been busy with that.   Callie decided to stay in gymnastics until the fall.  She and Jeff have been running track and she loves it.  Maybe that might be her new “thing” come spring (?)  Both girls are not excited for school to start, but what kid is?  I am going to miss them being gone all day again.

 I’ve also been staying up late watching the Olympics.  I am addicted to it and have loved watching our athletes’ compete, win metals or at least show good sportsmanship if they don’t.  It is crazy what some of them can do.  I am inspired to get into better shape faster.  Sure did break up the monotony in my TV watching life. (ha)

I am a little nervous about the counts but Jeff also assures me things are medicine related.  I am still positive and hoping everything is alright.  I can’t think about negativity all the time and just try to live each day the best I can.  10% MEDICINE   90%DETERMINATION!!!