Thursday, April 26, 2012

The Good Vibes are Working!!

Things have been pretty slow around here since I posted. Continuous trips to the doctors for updates and infusions. Staying close to my “cancer” family and watching some getting better while others are still fighting.   I am so amazed how strong people are doing this time.

We lost a great friend a few weeks ago and it hit me hard. Mark and I have been friends, soccer carpool buddies, cancer advisers and support buddies through this whole process. (He was diagnosed a month after me.)  I miss him a lot. RIP!

Last Tuesday did another bone marrow biopsy.  Didn’t hear anything yesterday and was frustrated.  The phone rang first thing this morning with good news on the line!  The scan shows no detected leukemic cells. YEAH!   They did see some “blast cells” but those could be mine and my body working.   My neutrophils “neweys” are up to 200 (I’ve been at 0 since January -500 is considered normal…I am almost there!)  So other numbers are moving up.

I am not out of the woods yet.  I still have to wait and prepare my body for the mini-transplant in a few weeks. I will continue to do weekly infusions with blood and platelets and well see what my body does.  I still have low energy and get tired a lot but that comes with the disease. I am eating better and trying to gain weight.  Food can be my enemy at times.

Thanks Megan for lunch the other day and for those of you who are still sending cards, calling or dropping off treats on the front porch!

Sunday, April 1, 2012

NO APRIL FOOLS!

I have been home for over a week from the hospital and doing well. The infected port on my chest is getting better, but still sore and I am still careful with it. Been to clinic every day (the tradeoff for getting to go home) and have only had platelets once. Everything is holding for now but we’ll check things 2-3 times a week to see what transfusions I need. The bone biopsy isn’t for a while so we’ve got some time to let the chemo treatment do its thing!

Callie’s gymnastics teacher opened the gym last Sunday so I could watch all that Callie has learned. THANKS WENDY!! I was so impressed and also a nervous mama. Ha! She has learned so much and can’t believe how much I have missed.

My Aunt Sandy was in town yesterday and brought her clippers. We shaved my head back to bald. Wasn’t as emotional as it was the first time since hair is hair….it will grow back. Thanks Sandy for that!!

I hate the PICC line I my arm but it is the best alternative for now. I am depended on Jeff (or someone else) to do my home transfusions. Takes about 3 hours a day….and unless I grow a third arm that is how it has to be for now.

Thanks for the cards, dinners, carpooling, phone calls and encouragements you have sent. We are truly grateful to all of you.