This
is week has been all about my liver, what it does, why we need it and how the
numbers affect my health. After seeing
Dr. Nielson and he also being concerned about my high levels he wanted to
ultrasound the liver to see if all the right blood flow was going into it. (Basically
check if all the vessels were working and bringing blood to the liver.) I got a
call at 10:30 am that they wanted me that afternoon but no appointments until
4:30pm. Oh, did I mention no eating or
drinking the whole day. AUGH. By the
time I got registered, did the ultrasound and finished it was 6:00pm. I was dizzy, hungry and tired. The technician
was impressed with my liver and said all looked good to her. We got
me something to eat and headed to McCall’s soccer game. Half way through the
game I start to get dizzy. I think the
lack of food, heat and long day put me over the edge. Jeff got me to the car with some small “black
outs”…but nothing serious. Home right to
bed….felt much better the next day.
The
following day the doctors wanted an MRI of the liver. I was luckily able to eat. HA! This checks the amount of iron in your liver
and how it looks in 3D. Got registered
again and in through the “donut” machine (as I like to call it). I am not claustrophobic so this does not
bother me. Takes about 30 minutes of
loud noises on a cold bed. No big
deal.
A call later from the doctor that
the liver looked good but now they needed a full liver biopsy. (I hate that word ….biopsy…yuck). No eating or drinking for this either but my
appointment was at 7:30am the next day.
More
registering and paper work. I met with
the RN got my needles put in and they hooked me up like a car. I had a zillions wires hooked up to me to
keep checks on all my vitals. Once in
the operation room I got the “good drugs”. These don’t really knock you out…but
make you super sleepy and feel wonderful. HA!
They put a small needle through the right side of my neck down the main artery
and took a few samples of the liver. I
went back to recovery with a large bandage on my neck. Finally was free to go home and just took it
easy for the day.
With
all these tests done the same results are back.
The liver is GVH free (from the donor). I don’t have any hepatitis C or liver
damage. I just have TOO much iron. We’ve taken me off some medications and today's number have come down almost 200 points.
We have also decided to take blood from me each week. Today the RN took 250ml. Next Friday we’ll recheck the numbers and if
my red-blood cells are holding we’ll take 500ml and continue each week until numbers are
normal. Funny how I used to get blood….now
I am giving it back. (Even though mine gets thrown out.)
Another gymnastics meet last week and Callie did great.
She took 3 place overall!!
McCall-Anna-Rachel-Lester
(all my daughters)
Love you guys!
