Vidaza Sucks..need the energy dance.

Yesterday, Carla completed the first cycle of that Vidaza drug to ratchet up the fight. She says "It SUCKS!" The drug treatment does have some side effects which requires anti-nausea medicine (doesn't always work) and a tough chin. It has no doubt been a tough sucky week on Carla. However, she is done with it for 3 weeks and looking forward to less frequent hospital visits.

We ran into a person we met at Carla's 100 day checkup at the clinic while waiting in the lobby. He had just finished his blood work and remembered us as well. We told him the news and he could tell we were still processing. He didn't miss a beat with his "roll up your sleeves" attitude and said "Half the battle is right up here", pointing to his head. "Keep your chin up, you can do it." Such simple words can empower and energize people...most definitely it did me! Once we got back into the room I was so much energized that I had to provide Carla my "energy dance" and top it off with a "wonder spouse powers activate" fist bump. You may recall the Super Hero - Hall of Justice - Wonder Twins with their "wonder twin powers activate" move. But that was just too Cajun backwoods to say.



Keep all that good coming. We are learning of all the good out there.

We love you all,
The Hennessy's

Relapse....

I needed a few days before I could post my most recent news. My numbers were continuing to fall and I wasn’t feeling myself. Tuesday's bone biopsy showed that the leukemia has now spread to my marrow. Luckily is a low percentage of cells, but unfortunately more treatment needs to happen. Currently I will be infusing with a drug called Vidaza for 7 days. (Out patient in the clinic with relaxation drugs.) Then I take 3 weeks off and the start the process all over again. I will also be off my immunosuppression drug by the end of January to let my white cells fight at full force. After 3 months we’ll recheck the marrow and see if it is gone. Currently I am devastated by the news since everything was going so well. I am trying to be strong!! Send your good vibes and prayers my way. :)

Small set backs...

Jeff and his "Rocky" t-shirt

Surprise Ipod from Santa

Surprise iHome from Santa

Girls wanted long jammies

Been feeling so good the last few months. I repainted our bedroom, finished off Christmas, organized some drawers and cabinets that needed it and basically getting things off my "to-do" list. I have recently been getting tired more often and with my weekly doctor visits noticed that some of my numbers were going down. (White, red and platelet numbers to be exact.)

Saturday afternoon spent 6 hours getting platelets and 2 pints of blood. (blood pressure 86/60) Feeling lot less tired now that I have oxygen in my blood. HA! Enjoyed Christmas weekend and was glad I could participate. Another long day at clinic today for more blood to check. Tapering down TACRO and losing some drugs. So far I am doing better but not hitting “normal levels”. Had to do the bone marrow biopsy today but asked for some drugs to relax me. (Yes, they helped and I am tired.) Don’t have to go back until next week so hopefully all stays regular. Let's hope we hear good results.

Hoping you all had a Merry Christmas. Lets bring in 2012 with a BANG.....cuz 2011 has sucked!! :)